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Active Grants and Sponsored Research

Project Date: July 1, 2016 - June 30, 2018
Sponsoring Organization: Ho/Chiang

PACT Social Work Fellowship: Preparing Future Leaders in Pediatric Palliative Care

Description of Major Goals
The purpose of this project is to train a PACT Social Work fellow. This will assist in maintaining the standard of care and help guarantee the best possible service for patients and families at Boston Children’s Hospital.
Project Date: October 20, 2015 - October 19, 2017
Sponsoring Organization: Sara Elizabeth O'Brien Trust

PediQUEST Champions for Spanish Speaking Families: Increasing minorities’ access to palliative care

Description of Major Goals
1. Spanish adaptation of PediQUEST web Survey: 7-9 months (2-months for face validity assessment of instruments, IRB approval of protocols, and researchers’ training, 4-6 months patient accrual, 1-month analysis and development of final survey versions); 2. Development of PediQUEST Web Spanish interface: 7-10 months (done concurrently with validation process) (6-8 months to translate/upload material and 1-2 months test); 3. Pilot test: (starts once 1 and 2 are complete): 6-8 months (expected enrollment rate: 1-3 patients per month).
Sponsor Grant ID: N/A Project Date: June 01, 2015 - May 31, 2017
Sponsoring Organization: US Cancer Pain Relief Committee

Pediatric Palliative Care Research Network: Building Strengths to advance PPC

Description of Major Goals
Aims: 1. Creation of a shared prospectively collected clinical database; 2. Support of face-to-face meetings of PPCRN members, including junior investigators, to further our research agenda and develop specific projects